Home again, home again

As anticipated, we got to bring Sophia home yesterday. While at the hospital we transitioned her to breastmilk which has made a world of difference. Her digestive tract is working much better and she hasn't thrown up at all (which I think is what caused her to aspirate in the first place). Now we are just hunkering down and preparing for a wonderful Christmas. Happy Holidays to everybody. We love you!

Here we are again

So, we are back in the hospital :(. Sophia wasn't quite acting right on Sunday and sure enough that night she got another temperature. We took her to the ER at Memorial (where I work) and they then transported her by ambulance back to UCSF. The whole ordeal was pretty traumatic. The moment we got back up to the floor where we had spent so much time, I lost it. It's really like reliving a nightmare. Hopefully, this time the nightmare will be shorter. She has aspiration pneumonia again and after a few days of IV antibiotics, she is on the mend. There is buzz about us leaving as early as Friday. The most frustrating part of this all is that we did everything we could at home to prevent this from happening. Because of the Down Syndrome, Sophia has low muscle tone everywhere. This includes the sphincter that is supposed to keep stomach acid down, so unfortunately, I'm not sure if this is entirely preventable. Other than this, she is doing very well. She is moving around more, trying to grab at toys, and getting bigger. She is now able to be given breast milk through her G tube instead on Monogen, so I think that will help with her stomach issues. We are shooting to be out of here by the end of this week, take her home, and continue with the wonderful time we were having!

Finally Home!

Sorry for the delayed update, we have been busy, busy, busy! Sophia came home finally on December 5th. We are all beyond thrilled to finally be together as a family, and just in time for Christmas. We have been working on getting a schedule together that works for us because our little one still needs quite a bit of medical care. Will has taken to his sister better than expected. He gives her multiple "butterfly" kisses a day, but you have to watch him closely because he'll try to sneak a pinch or two in every one and a while. Sophia is doing wonderfully. We took her to the doctor on Wed and she had already gained over a pound since she left the hospital. This was so great to hear because it made me feel like we were doing a good job! I feel an enormous amount of stress being a nurse and caring for my own child, but everyday gets better. For right now, we are just enjoying our time together and focusing on staying healthy and happy. Thanks to everybody again for everything, you are all part of our happiness!