Here we are again

So, we are back in the hospital :(. Sophia wasn't quite acting right on Sunday and sure enough that night she got another temperature. We took her to the ER at Memorial (where I work) and they then transported her by ambulance back to UCSF. The whole ordeal was pretty traumatic. The moment we got back up to the floor where we had spent so much time, I lost it. It's really like reliving a nightmare. Hopefully, this time the nightmare will be shorter. She has aspiration pneumonia again and after a few days of IV antibiotics, she is on the mend. There is buzz about us leaving as early as Friday. The most frustrating part of this all is that we did everything we could at home to prevent this from happening. Because of the Down Syndrome, Sophia has low muscle tone everywhere. This includes the sphincter that is supposed to keep stomach acid down, so unfortunately, I'm not sure if this is entirely preventable. Other than this, she is doing very well. She is moving around more, trying to grab at toys, and getting bigger. She is now able to be given breast milk through her G tube instead on Monogen, so I think that will help with her stomach issues. We are shooting to be out of here by the end of this week, take her home, and continue with the wonderful time we were having!